Mid America Chapter

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FAQs  

Is there a registration fee? How much money do I have to raise?
There is no required registration fee or pledge minimum, but this is a fundraising event. We fully expect a pledge to the National MS Society to support programs and services for the 11,000 people living with MS in our area. For those who do chose to fundraise, there are a lot of fun incentives that can be viewed on our Prize Page.

Can I register for Walk MS by mail?
Yes. Please download the Walk MS Registration Form and mail the completed form to:
Walk MS, Mid America Chapter
7611 State Line Rd., Ste. 100
Kansas City, MO 64114

How do I qualify for a T-shirt or other prizes?
You need to raise and turn in $100 to earn an official Walk MS t-shirt. There are other great prizes you can earn as you reach higher fundraising levels. Learn more here.

How do I claim my prize after the Walk?
If you have qualified for a prize by raising $250 or more, you will receive a prize redemption code in July. 

How long is the Walk?
Our fully accessible walks will have routes ranging from three miles to six miles. However, there is always additional support along the route, if needed.

What about inclement weather?
Each walk will take place rain or shine. However, we do have several plans in place to accommodate inclement weather that will allow us to be safe and still enjoy the event. Please tune into your local weather reports in the morning to determine if it's safe for you and your family to attend the walk. In addition, our Facebook and website will be updated to reflect any event changes.

After Walk MS is over, where do I turn in my money?
You may drop off any cash donations at one of our chapter offices during business hours. Checks may be made payable to The National MS Society or NMSS. Please write your name on the memo portion of each check so that they can be added to your fundraising total. Send all check donations to:

National MS Society
Mid America Chapter
7611 State Line Rd; Ste100
Kansas City, MO 64114

How do I get receipts for my donors?
You can download these forms and make as many copies as you need.

How do I claim my prize after the Walk?
Everyone who qualifies for a prize will be sent a postcard informing them of their qualification. The information to claim the prize will be sent electronically so make sure the MS Society has a current email address on file for you!

You also have the option to decline your prize and join our Mission First Club. By declining a prize, more of the money you raised stays at the MS Society to support the vital research and programs that are part of our mission - a world free of MS. If you would like to join the Mission First Club, email us at midamericachapter@nmss.org. You can join at any time! You don’t have to wait for the prize deadline.

Share Your Story 

 

We all have reasons we walk or volunteer. Here is where you can share your story. Tell us why you have joined the movement.

 

Ashlea Lutjen - Walk MS Marshall participant
I was diagnosed with MS on March 23, 2012. Anyone with this illness knows that it changes your outlook on life and plans that you have made for yourself. I am participating for the first time in the Marshall Walk MS because this cause means so much to people like me that suffer from this illness everyday. I am hopeful that there will be a day in my lifetime that more answers can be provided and more relief can come to myself and others. As a mom to a young son, I hope that I am able to stay as active and healthy as I can to participate in his energy filled days. I am surrounded by some of the best people in the world who have been my rock and my sanity during all of this craziness. So I walk to say thank you to everyone who has ever offered me a hug or support during this. I walk because I want a world free of MS, a world where my child and his children will never have to live with this.

Kayla Leavell - Walk MS Joplin participant
Getting diagnosed with MS was actually a pretty long drawn out process. I slowly started losing my eye sight in my right eye. When I finally decided to go to the doctor, they sent me straight to the ER for an emergency CT of the brain followed by two different eye doctor appointments. At first, they thought my retina was detaching or possibly shingles in my eye. After about two weeks of seeing the eye doctor and having absolutely no vision left in my eye, they finally diagnosed me with MS, at the age of 24. At that time, I didn't even know how to feel because I didn't even know what MS was. All I could think was why? Why me? I was scared out of my mind with the thought of having a disability, not knowing what I can or can't do in life and giving myself injections three times a week. I was a phlebotomist so needles didn't scare me at all until it came to actually doing it on myself. I was without any vision in my right eye for about a month, not knowing if I would ever even get it back or not.  I went through the injections for a little over a year. Never once did it ever get easier and it felt like a huge disappointment because I was still having just as many outbreaks. My MRI's just kept getting worse and worse. They say stress is a huge key to controlling your MS, but how can you not stress when you feel like you're failing? Nothing is working. Some days you feel so completely helpless. Things that used to take me 10 minutes, I now struggle with for about 30 minutes.  I finally decided to drive nine hours to Mayo Clinic to get a second opinion and hoping they might know a different drug I could try, but instead, I got the same answer. 110% completely for sure MS. Faith never fails and I refuse to let MS run my life. Please help me to go from "I have MS, to I had MS".

Mable Walker - Walk MS Salina participant
When my Mom was about 11 years old, Grandpa (her Dad) was diagnosed with MS. She was the youngest at that time and she was the one that stayed home to help him the most because other family members were working cattle and the farm. Since she and Grandpa spent so much time together they were very, very close. Then in August of 2006, Mom sustained a traumatic brain injury as the result of a motor vehicle accident. Everyone thought she was going to die and if she did liv,e she would be a vegetable. After about 8 weeks in the hospital and rehab, she proved everyone wrong. With her courage and strength, that I believe she received from Grandpa, she lives and she walks! Well, Mom did not miss the 2007 MS Walk. She may have "walked" most of it in her wheelchair, but she was there! My mom started walking in Walk MS in 1996 and has not missed a single year. She even has the t-shirts to prove it! This disease impacted my mom's whole life, and she is very dedicated and determined to help fight it.

 

Angela Hereth - Walk MS Lincoln participant
I walk because I was diagnosed in 1999 age 27, three months after having my son. I can still walk and will keep going the best I can for my son, husband, family and friends. I hope to keep others positive and hope for a cure.

Dave Seales - Walk MS St. Joseph participant
I walk and volunteer because since my mom was diagnosed over 7 years ago, I have seen first hand how MS affects the lives of people who have been diagnosed. While there have been great strides in the treatment of MS symptoms, including the recent release of oral medications...there is still no cure for this debilitating and frustrating disease. I walk for my mom and to help support the efforts to find more ways to treat the symptoms of MS and eventually, and hopefully....to find a cure.

Sarah Zulkoski - Walk MS Omaha participant 
My Dad was diagnosed with MS when I was in very young. My paternal aunt and older sister also have the disease. When my younger sister was diagnosed in 2002 at the age of 19, my family was familiar with the disease. My sister was determined to not let MS get her down and to continue living an active life. I was diagnosed with MS in 2011 at the age of 34. I know by my sister's example that WE can beat this; WE can live an active, normal life. WE will live the moment. WE will remain and always be positive. My sister and I made a pact when I was diagnosed to stick together, walk side-by-side and beat this disease. 

Christina Ummel - Walk MS Manhattan participant
My mom was diagnosed with MS in 2000 and I was diagnosed in 2001.  I walk because I can still walk!  And, in hopes that someday my daughters won't have to deal with having MS.

Delma Hays - Walk MS Kansas City participant 
I walk because MS has been a companion in my life for as long as I can remember. My dad was diagnosed with MS at an early age. He passed away at the age of 42 from complications of what is now known as progressive MS. I have a young cousin with MS, and a girl I grew up with also has MS. I have been very fortunate. I was diagnosed in April 2000 at the age of 40, however, I thought I had it much longer. Please help us find a cure for future generations. I dream of a world without MS. Will you help us DREAM?

Steve Carrigan - Walk MS Omaha participant
I was diagnosed in July of '06. At that time, injections were the only medication available to me. Now I am about to start taking a pill, Gilenya. Who knows what will happen in the next 5-10 years in MS research. I support MS research and the MS society.

Shannon Smith - Walk MS Kansas City participant
I walk to support and inspire hope. I have had MS for 6 years (I am 24) and am still learning how to live my life with it. I do my best to live a healthy, positive life and let the MS effect me only as much as it has to. Some days I struggle to maintain a positive outlook, especially when I have to think about the fact that there is only one drug on the market that I can take. Bonus, it doesn't seem to work for me especially well, and I am on long term IV steroids to hold a steady baseline until new meds hit the market. On these days, I wonder what my long term outcome will be. My diagnosis has helped me learn to grab life by the horns and not put things off. I don't want to look back and think "I wish I would have, especially when I could have". I also remember there is hope, always hope. Hope, self determination, motivation and power of will, will carry me a long way. So I walk to remember, inspire and encourage hope. Hope for me and everyone else.

 

Chelsea Bolyard - Walk MS Wichita participant
I walk in support of my mother, I remember the day she told me she had MS and I literally fell to the floor and started crying in the middle of her driveway. Every person with MS needs support and deserves it too. Its hard to watch my mom go through this struggle alone, and I'm here to support her and help her in anyway I can. I love my mom and I hate to see her go through this, and my thoughts and prayers go out to every individual person who has MS, who knows someone with MS or will get MS one day. Keep strong, you can make it through this.

Jill Heese - Walk MS Lincoln participant
I walk because I'm selfish. Yep, I said it. I will never forget the day I was diagnosed - August 8, 2005. How terrified my mom was as she sat with me at my neurologist's office, waiting for the diagnosis we knew was finally going to come after eight months of tests. She was terrified because she was a nurse, and she knew the challenges I would face. The wonderful label of a preexisting condition that would float over my head for the rest of my life. The years of shots that made me feel like I had the flu every other day - shots that were my only way to slow down this disease, but came with such terrible side effects that I stopped taking them years ago. I walk because I'm selfish, and I want to be able to one day say, "I had MS," instead of, "I have MS."

Debbie Schneider - Walk MS Wichita participant
I was diagnosed with M.S in 1993. I had only been married for one year and just had my son when I started having numbness in different parts of my body. I have done the walk for many years, and I love to be able to help out in any way I can to help find a cure for MS. My moto has always been I have MS it doesn't have me. Thank you to everyone that puts this walk together and to all that raise money for MS research. God bless each of you.

Deloris Reed - Walk MS Johnson County participant
I walk for my sister-in-law who is also my closest friend. I walk for her because I see her struggle with all the fights of the symptoms of having MS while also being of a mother of two small children, wife and the financial burden it has caused them. I would love to take this away from her, but I can't so I will give the strength I have, and walk and support along with family. We love you! 

Jody Stice - Walk MS Omaha participant
It was 1999, I had just turned 23. After graduating from college and participating in collegate athletics at an international level, when my legs went numb on a run, I first guessed it was a pinched nerve. Much to my dismay (so I thought) and after seeing a neurologist in Nebraska and one at the Mayo Clinic, they were in agreement that this was MS. I started on a once-a-day therapy right away to get as much benefit as possible in controlling symptoms and relapses. My children and husband are very supportive and helpful. We look forward to the future as a team. Not everyday is going to be a "walk in the park". However with a great support network and attitude, many more things can be accomplished. Focusing on the positive, what I CAN do...rather than the negative, what I can't do...helps me get through every challenge. Technology and medicine has come along way, we should embrace it and use it to our advantage. I may walk a little slower, I just tell my kids it is to "make them SLOW DOWN instead of RUSHING through life!"

Michelle Raney - Walk MS Wichita participant
In March of 2011, I lost most of the use of my left leg. I was diagnosed with a cancerous brain tumor and underwent surgery to remove the "tumor". A little less than a month later, reports came back from the Mayo Clinic stating that this was not a cancerous tumor that they removed afterall, and they weren't positive what it was. I was later diagnosed with Multiple Sclerosis by my neurologist. This past year has been a very frustrating journey at times, but my family has been awesome. My daughter and cousin found out about Walk MS in Wichita and decided to start up a team. We are all new this but we are all excited and ready to go!!!

Christy Jones - Walk MS Kansas City participant
I was an event planner for the MS Society in Springfield, MO for the area of Bolivar, MO for about four years, and I loved it, and we raised tons of money for a cure for MS. My ex-husband has had MS for 13 years. He was diagnosed two weeks before we got married in 1998. I saw him struggle and it never got better. It got worse year after year. MS took his strength and life from him. He decided that I need more in life than this. I struggled with that decision because I loved him. He is a great man and father. I still to this day help him as much as I can. I am now re-married, but we are all very close to him. He has been in a wheelchair for the last 8 years. It hurt and breaks my heart to see him like that, but he is strong. He looks at life as gift not as a burden. This is why we walk - to find a cure for MS and for him.

Joyce Braudaway - Walk MS Joplin participant
I have been diagnosed with MS for many years. I find myself asking God why, but I must say that God tries to make everything a blessing.  When I was first diagnosed, everything was going crazy so I gave up a job I dearly loved. I quickly got better and was able to help my husband with his business of delivering newspapers. Our son called one day and his first words were "How is the MS". I thought it was surely bad news. At that time the MS was just MS, so I asked what was wrong. His next words were "How do you feel about being a Grandma?”  I was extremely shocked! A few months later, when my granddaughter came to live with us, she was a God-send.  She is now 7 and lives with us and we adore this blessing.  She goes on newspaper routes with me and is a great source of joy, not only to me, but to our customers.  She once told me she was going to be a neurologist so she could find a cure for MS.  I was shocked at the time since she was only 5. I wondered how many kids even know what a neurologist is. She has walked with me every year, since when  I had to push her in stroller. And now she is at the end handing out medals. This is why I walk.

 

Share Your Story

 


 

THANK YOU TO OUR NATIONAL SPONSORS

National MS Society - Mid America Chapter
7611 State Line Suite 100
Kansas City, MO 64114
913-432-3926 ; MidAmericaChapter@nmss.org

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